livebooks blog

When Joe McNally, a legendary photojournalist and lighting guru, stopped by the liveBooks office during some rare down time in San Francisco, I couldn’t resist setting up a video interview. (Thanks to videographer Drew Gurian.) Joe has contributed to National Geographic for 20 years and was a staff photographer for LIFE magazine. He works with huge commercial clients and produced a seminal portrait series of September 11 heroes. He’s also the author of two must-read instructional books and writes a very popular blog — which brings us to the video below.

Joe started his blog in 2008 after prodding from friends (and avid bloggers) including Moose Peterson, David Hobby, and Scott Kelby. Now the blog is an important part of his business, especially since “big pipelines” for assignments have dried up in recent years.

“Any photographer out there now is stitching together things,” he says. “Work comes now in all sorts of strange ways.” Smart photographers like Joe understand that blogs and social media are an important part of that patchwork. They bring in assignments, create buzz, and help build community with other top professionals. (If you haven’t seen Joe’s parody of Chase Jarvis’ Consequences of Creativity video, I recommend you watch that too.)

“Part of the project I’m working on here in New Guinea is documenting endangered languages and helping them revitalize that. So we bring them computers, we bring them video cameras, still cameras, audio recording systems. And we empower people, where invited, to do their own revitalization, to bring back their language, to maintain their language, and to maintain and revitalize their culture.

It doesn’t mean because a new technology comes along that it necessarily has to replace the old technology, the ancient technology, the ancient rituals.”

Garrett with his mom and dad. ©André Hermann

Name: André Hermann
Website: www.andrehermannphoto.com
Age: 35
Location: Oakland, CA
Full-time job: Visual storyteller

Personal project name and description
Garrett: The Boy Beneath The Bandages — Epidermolysis Bullosa, or, EB, is a rare genetic skin disease that most people have never heard of, yet it affects 100,000 children across the United States alone. Children born with this disease lack the ability to produce the collagen-7 protein that acts as a glue to bind the inner and outer layers of skin together. Their skin is extremely sensitive and fragile, with open wounds similar to third degree burns that never heal. The slightest friction or bump causes the skin to blister and break down. EB kids live relatively short lives, wrapped in bandages and in constant pain.

This series of images tells the story of a 12-year-old boy named Garrett, his family, and the challenges they face every day because of this debilitating disease. EB not only takes a toll on its victims and their families, it also affects their friends, caregivers, and the communities that help them. Through these images, I will attempt to give a face to this horrific and unpublicized disease.

When and why did you start it?
I started work on this story in 2008 as my thesis while pursuing a masters in photography at the Academy of Art University. During the summer semester of 2007, I answered an ad on the school’s job board. A nonprofit organization that ran a week-long summer camp for kids with genetic skin disorders needed a photographer. I jumped at the opportunity.

During the week of camp, I met Garrett and his family. I had never heard of EB. In a weird way, I feel like this story found me. Everything just seemed to fall into place. Garrett’s family and I both recognized this as an opportunity to gain much needed awareness for the disease. I pitched the idea to them. I was nervous because I was asking them to enter a 1-year+ commitment without knowing much about me. They agreed to the idea, and here we are today.

Do you have a particular image you are especially drawn to so far? More »

“We also have a la carte pricing so they can see the value of each package.”